{"product_id":"shelter-from-the-storm-caring-for-a-child-with-a-life-threatening-condition","title":"Shelter from the Storm: Caring for a Child with a Life-Threatening Condition","description":"critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations. Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.","brand":"Da Capo Press","offers":[{"title":"Default Title","offer_id":51993779306727,"sku":"9780738205342","price":19.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0449\/4075\/5096\/files\/imageloader_f8203b3d-a0ed-4e59-98a8-5679979a0881.jpg?v=1776660052","url":"https:\/\/arvidabookco.com\/products\/shelter-from-the-storm-caring-for-a-child-with-a-life-threatening-condition","provider":"Arvida Book Co.","version":"1.0","type":"link"}